Cystic Fibrosis New South Wales
DescriptionWho are we?
In 1967 a group of parents of children with CF and medical personnel involved with treating the condition founded the organisation as the Cystic Fibrosis Association of New South Wales.
Originally a parent self-help group the organisation has gradually employed a growing staff of professionals to provide a range of support services, an information and education service, and an advocacy service. Today we employ 12 full-time, part-time and casual staff and we are assisted by dedicated volunteers.
To improve the quality of life for people with CF and their carers.
We are dedicated to achieving the best possible care and quality of life for people with Cystic Fibrosis and their carers, now and in the future.
We work mainly to requirements under Corporations Law and the NSW Charitable Fundraising Act 1991.
We are accountable to our members and those who use our services, our donors and supporters, and to government departments for specific service programs.
In everything we do we are guided by the following principles:
-act responsibly and with integrity
-listen to the people we serve and respond to their needs
-strive to attain best practice
-promote continual learning and imparting of knowledge
What we do:
We provide a home visiting support service, which includes a range of counselling services as well as practical support and treatment in the home to lighten the load of families caring for a child or young person with CF. We have a Peer Support Program and a Country Outreach service. We provide a range of information services and seek to raise the level of public awareness of Cystic Fibrosis.
We raise funds for research, which we direct to the Australian Cystic Fibrosis Research Trust.
We advocate for the CF community by lobbying with all levels of government for improved services and benefits and we also provide advocacy support on an individual basis.
WebsiteCystic Fibrosis New South Wales
StateNew South Wales
Social CategoryCommunity Support/Advocacy
Open Volunteer Projects for this Community Group
This Community Group currently has no active volunteer projects