Description

Who We Are
The HSP Research Foundation Inc. is a new, registered charity made up of people from all parts of Australia who have a rare genetic disorder most commonly known as Hereditary Spastic Paraplegia (HSP).

As the name implies, HSPers have spasticity in the legs and all the problems that brings with it. While many HSP sufferers walk with difficulty but without help, a significant percentage need a range of aids including wheelchairs.

The disease is degenerative, so symptoms worsen with age. As a hereditary disease, it is passed in the genes from generation to generation.

Everyone involved with the HSPRF is a 100% volunteer.

Our Vision
Is for HSP sufferers and those at risk knowing their causal mutation and adopting new therapies and practices to prevent further inheritance.

We aim to participate, in and support global efforts to find a cure for this disease. The HSPRF is also the focal point for community and education for all its members. We also raise funds for research.

Website

State

New South Wales

Social Category

Health