Alpha-1 Association of Australia

Alpha-1 Association of Australia

The Alpha-1 Association of Australia (AAA) was established to support families and those affected by or interested in Alpha-1 Antitrypsin Deficiency (AATD). AATD is a genetically inherited medical condition which can seriously affect the liver, lungs and skin.

AATD can manifest as emphysema in adults as young as 30 years, sometimes younger and is a significant cause of liver transplants in children.

AATD is under-recognised, taking an average of ~8 years between initial patient presentation and diagnosis. Yet it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin (AAT) gene. AATD is often misdiagnosed as asthma or bronchitis.

The AAA is an unfunded not for profit organisation partnering with professionals and other organisations to help raise awareness of and raise funding for a range of projects including:

* An Australian AATD national research registry;

* Inclusion of AATD in newborn screening for early diagnosis;

* Access to AATD augmentation therapy;

* General awareness raising events;

* Providing education and patient support.

All donations will help achieve our objectives.

 
 
 
 

 
 
1-6 of 12
 
AUD $2

Alpha-1 Physician's Information Sheet

This project includes printing and providing an information sheet that patients can take to their Physician for testing referrals to determine AATD... Read More

AUD $5

Alpha-1 Branded Merchandise

This project includes providing our representatives the resources required for acquiring AAA branded merchandise for fundraising events towards thi... Read More

AUD $10

Educational Material For Children With A...

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More

AUD $25

Children With Alpha-1 Educational Materi...

This project includes providing our representatives the resources required for developing, designing and publishing educational material for childr... Read More

AUD $25

Alpha-1 Antitrypsin Deficiency

Our projects include establishment and operation of an Australian AATD national research register, introducing newborn screening for early diagnosi... Read More

AUD $35

Alpha-1 Antitrypsin Awareness T'shirts

This project includes providing funding to acquire AAA branded T'Shirts to create conversations and raise awareness for this worthy cause. ... Read More